206 Works

GenV Cohort 2020s Protocol Synopsis

William Siero, MELISSA WAKE, Richard Saffery, SHARON GOLDFELD, KATHRYN NORTH, Dino Asproloupos, Katie Allen, David Burgner, Jim Buttery, JOHN CARLIN, Jeanie Cheong, Nigel Curtis, Ben Edwards, Harriet Hiscock, ANNE-LOUISE PONSONBY, JOANNE SAID, Danah Hourani, Alisha Gulenc & Libby Hughes
The GenV Cohort 2020s Protocol Synopsis is a 3-page summary of the aims, features, timeline and elements of GenV. It is a more brief version of the GenV Cohort 2020s Statement of Intent. This synopsis aims to outline succinctly the major elements of GenV including enrolment and informed consent, and collection of data and biosamples. This is version one and is correct to the best of our knowledge as of July 2019.

GenV Cohort 2020s Protocol Synopsis

William Siero, MELISSA WAKE, Richard Saffery, SHARON GOLDFELD, KATHRYN NORTH, Dino Asproloupos, Katie Allen, David Burgner, Jim Buttery, JOHN CARLIN, Jeanie Cheong, Nigel Curtis, Ben Edwards, Harriet Hiscock, ANNE-LOUISE PONSONBY, JOANNE SAID, Danah Hourani, Alisha Gulenc & Libby Hughes
The GenV Cohort 2020s Protocol Synopsis is a 3-page summary of the aims, features, timeline and elements of GenV. It is a more brief version of the GenV Cohort 2020s Statement of Intent. This synopsis aims to outline succinctly the major elements of GenV including enrolment and informed consent, and collection of data and biosamples. This is version one and is correct to the best of our knowledge as of July 2019.

CP for GPs Fact Sheet 16: Tips for people with cerebral palsy and those who support them

DINAH REDDIHOUGH, JANE TRACY, Tessa De Vries, Debbie Dorfan & Natasha Street
This fact sheet is for people with cerebral palsy and those who support them in their healthcare needs. It provides some ideas for making the most of your appointment with your GP.

Algorithm for the Early Diagnosis of Cerebral Palsy Clinical Guideline Recommendations for Health Professionals.

Lynda McNamara
This fact sheet outlines an algorithm for the early diagnosis of cerebral palsy or high-risk of cerebral palsy from the clinical practice guideline.

CP QOL-Teen: Primary caregiver version (13-18 years). Version 2

ELIZABETH WATERS, ELISE DAVIS & MELANIE DAVERN
The CP QOL-Adolescent is a measure of quality of life for adolescents with cerebral palsy that can be used by researchers, clinicians, health professionals and educators to measure and assess changes in adolescent’s quality of life.

Technical Paper 1: Development and Use of CheckPoint Sample Weights

Susan Ellul, Richard Hiscock, Fiona Mensah, Susan Clifford & John Carlin
This paper details the methods used to develop cross-sectional survey weights for the Longitudinal Study of Australian Children's (LSAC) Child Health CheckPoint study. The CheckPoint team recommend using the survey weights in analyses targeting population descriptive quantities such as mean values, in order to make less biased population-based inferences.

The Victorian Child's Lifecourse Journey in Data

Melissa Wake, LORETTA GASPARINI & William Siero
The Victorian Child's Lifecourse Journey in Data maps data that is routinely or often collected in Victoria, Australia, across the lifespan from pre-conception to adulthood.
It aims to summarise a complex and changing landscape in a simple infographic and supporting table. This is version one and is correct to the best of our knowledge as of July 2018.

Collaborate for children scoping project: Final Report The state of play in Australian place-based activity for children

Sue.West@Mcri.Edu.Au
This final report, The state of play, draws from and summarises three key publications produced by the Centre for Community Child Health during the project:
1. The evidence – summarising what we know about place-based approaches.
2. A snapshot of place-based activity – documenting who is driving, doing and supporting place-based initiatives in Australia.
3. Big thinking on place – outlining expert-identified issues and opportunities for getting place-based activity moving.
This report provides recommended action...

Child Health CheckPoint Labelled Child Questionnaire

Child Health CheckPoint Team
Child participants completed the CheckPoint Child questionnaire on an iPad or laptop. This annotated version of the questionnaire provides information on branching rules, corresponding variable names, and response type and coding.

Hammersmith Infant Neurological Examination (HINE) practice points from the early diagnosis of cerebral palsy guideline.

Lynda McNamara
This fact sheet provides information on practice points on the Hammersmith Infant Neurological Examination (HINE) from the early diagnosis of cerebral palsy clinical practice guideline.

Edition 28: The First 1000 Days: Our greatest opportunity

Tim.Moore@Mcri.Edu.Au, Noushin.Arefadib@Mcri.Edu.Au, Vikki.Leone@Mcri.Edu.Au & Sue.West@Mcri.Edu.Au
The best opportunity to build a strong foundation for lifelong health and wellbeing occurs during the first 1000 days – the period from conception, throughout pregnancy, and during a child’s first two years. This Policy Brief outlines the implications of this critical time, identifies factors that place children at risk, and recommends a coordinated approach that addresses children’s needs in order to optimise their health and wellbeing, now and into the future.

CP for GPs Fact Sheet 3: Medical care for individuals with cerebral palsy

DINAH REDDIHOUGH, Debbie Dorfan, Natasha Street, JANE TRACY & Tessa De Vries
People with cerebral palsy may have a range of health issues related to both the intrinsic musculo-skeletal issues of cerebral palsy, and the impact of the underlying cause on other body systems. This fact sheet describing some of the associated health implications and treatment options for GPs.

Longitudinal Study of Australian Children's Child Health CheckPoint Data User Guide – December 2018

Susan Clifford, Sarah Davies, Alanna Gillespie, Katherine Lange & Melissa Wake
This document provides data users with key information about the Longitudinal Study of Australian Children's (LSAC) Child Health CheckPoint study and data. The Data User Guide provides information to assist users understand how and why data were collected (e.g. study methodology and measures descriptions) and navigate the CheckPoint dataset (e.g. variable naming conventions and using quality control flags).

CP QOL-Child Manual. Version 2

ELIZABETH WATERS & ELISE DAVIS
This manual describes the development of the Cerebral Palsy Quality of Life Questionnaire for Children (CP QOL-Child), a condition-specific quality of life (QOL) questionnaire for children with cerebral palsy aged 4 to 12 years. CP QOL-Child was developed by an international multidisciplinary team of clinical and child health researchers, in collaboration with parents, and children with cerebral palsy. The team spanned Australia, the United States, Germany, and Scotland.
The CP QOL-Child was developed in response to...

MRI - Interpreting the results: Quick reference guide

Lynda McNamara
This fact sheet provides information on interpreting abnormal neuroimaging patterns in the early diagnosis of cerebral palsy.

Prechtl's General Movements Assessment - key evidence

Lynda McNamara
This fact sheet provides an overview of the systematic review evidence of the General Movements Assessment and predictive value for cerebral palsy.

Cerebral palsy for general practitioners

DINAH REDDIHOUGH, JANE TRACY, Tessa De Vries, Debbie Dorfan & Natasha Street
Educational resources designed to support general practitioners in the care of their patients with cerebral palsy.

False Positive and False Negatives - The General Movements Assessment

Lynda McNamara
This fact sheet provides information on the General Movements Assessment and false positives and negatives. The Australian Cerebral Palsy Register indicates less than 5% of cerebral palsy diagnosis are false positive results with standardised tools.

Early intervention.

Lynda McNamara
Clinicians should understand the importance of prompt referral to diagnostic-specific early intervention to optimise infant motor and cognitive plasticity, prevent secondary complications, and to optimise carer well-being. This fact sheet provides information on early intervention in cerebral palsy.

CP for GPs Fact Sheet 5: Managing complexity

DINAH REDDIHOUGH, JANE TRACY, Tessa De Vries, Debbie Dorfan & Natasha Street
People with cerebral palsy often have multiple medical and social issues. This fact sheets describes a systematic approach to managing the complexity inherent in care.

Edition 29: Child mental health: a time for innovation

FRANK OBERKLAID
Child mental health has long been marginalised in policy and funding discussions. This Policy Brief identifies an urgent need to change this paradigm and formulate a comprehensive, sustainable and evidence-informed plan to effectively promote and improve the mental health of children and the adults they become.

Edition 28: The First 1000 Days: Our greatest opportunity

Tim.Moore@Mcri.Edu.Au, Noushin.Arefadib@Mcri.Edu.Au, Vikki.Leone@Mcri.Edu.Au & Sue.West@Mcri.Edu.Au
The best opportunity to build a strong foundation for lifelong health and wellbeing occurs during the first 1000 days – the period from conception, throughout pregnancy, and during a child’s first two years. This Policy Brief outlines the implications of this critical time, identifies factors that place children at risk, and recommends a coordinated approach that addresses children’s needs in order to optimise their health and wellbeing, now and into the future.

Teacher professional development needs at the health-education interface: Supporting teachers, supporting children

Catriona.Elek@Mcri.Edu.Au
The research question addressed by this study was: What professional development would support early childhood and primary school teachers in NSW in relation to their students' health and wellbeing?

Registration Year

  • 2017
    28
  • 2018
    148
  • 2019
    30

Resource Types

  • Text
    168
  • Audiovisual
    14
  • Other
    12
  • Collection
    10
  • Dataset
    2