Supporting carers of people with a progressive neurological condition

Florien Boele, Emma Nicklin, Sarah Bronsdon, Ian Brooke Mawson, Peter Buckle, Sian Cartwright, Claire Hulme, Lisa McInerney, Yvonne Palmer, Robbie Foy, Juliet Jopson, Rory O'Connor, Amy Rebane & Judy Wright
Unpaid carers provide round the clock support to people living with a condition that affects the brain and gets worse over time (progressive neurological condition). Caregiving can be rewarding, but can also affect carer health and wellbeing. Carers consistently report many unmet support needs. We believe that carers, academics, service providers, and policymakers need to work together to improve support for carers and offer five pillars of action.

Registration Year

  • 2022
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Resource Types

  • Dataset
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Affiliations

  • Leeds Community Healthcare NHS Trust
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  • University of Leeds
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  • Leeds City Council
    1
  • University of Exeter
    1