Inverting the patient involvement paradigm: defining patient led research

Laura B Mader, Tess Harris, Sabine Kläger, Ian B Wilkinson & Thomas F Hiemstra
Plain English Summary Patients usually understand their disease and lifestyle needs better than many medical professionals. They also have important ideas about what research would be most beneficial to their lives, especially on how to manage symptoms in a way that improves daily quality of life. In the UK, the National Institute for Health Research has recognised the value of patient insight, and now requires researchers with public funding to involve patients and the public...
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