Medically explained symptoms: a mixed methods study of diagnostic, symptom and support experiences of patients with lupus and related systemic autoimmune diseases.

Melanie Sloan, Rupert Harwood, Stephen Sutton, David D'Cruz, Paul Howard, Chris Wincup, David Brimicombe & Caroline Gordon
Objectives: The aim was to explore patient experiences and views of their symptoms, delays in diagnosis, misdiagnoses and medical support, to identify common experiences, preferences and unmet needs. Methods: Following a review of LUPUS UK's online forum, a questionnaire was posted online during December 2018. This was an exploratory mixed methods study, with qualitative data analysed thematically and combined with descriptive and statistically analysed quantitative data. Results: There were 233 eligible respondents. The mean time...
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