Patient participation in medical guideline development on cystic fibrosis

F. Brunsmann, W. Bremer, J. Bend, I. Kopp, E. Rietschel & F.M. Müller
Background: Cystic fibrosis (CF) is a life-shortening inherited rare disease. Procedural know-how of including patient experiences into the development of guidelines is still incomplete, especially in rare diseases. Context: Procedural elements were established to make CF patient experiences on medical[for full text, please go to the a.m. URL]