Data from: Understanding families' experiences following a diagnosis of non-syndromic Craniosynostosis: A qualitative study

Victoria Kuta, Lauren Curry, P. Daniel McNeely, Simon Walling, Jill M. Chorney & Michael Bezuhly
Objectives: Craniosynostosis, a congenital anomaly producing an abnormal cranial morphology, is typically diagnosed and surgically corrected within the first year of life. Given the young age of this patient population at the time of diagnosis, it is reasonable to expect this experience to be a very significant and stressful ordeal for patient families. Despite this, there is little research exploring the impact that craniosynostosis has on families, especially in the early stages. In this study,...
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These counts follow the COUNTER Code of Practice, meaning that Internet robots and repeats within a certain time frame are excluded.
What does this mean?