A review of response rates over time in registry-based studies using patient-reported outcome measures

Katherine Wang, Cathrine Eftang, Rune Jakobsen & Asbjørn Årøen
Objectives: Gain an overview of expected response rates (RRs) to patient-reported outcome measures (PROMs) in clinical quality registry-based studies and long-term cohorts in order to better evaluate the validity of registries and registry-based studies. Examine the trends of RRs over time and how they vary with study type, questionnaire format, and the use of reminders. Design: Literature review with systematic search. Data sources: PubMed, MEDLINE, EMBASE, kvalitetsregistre.no, kvalitetsregister.se, and sundhed.dk. Eligibility criteria: Articles in all...
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