Generalizable EHR-R-REDCap pipeline for a national multi-institutional rare tumor patient registry

Sophia Shalhout, Farees Saqlain, Kayla Wright, Oladayo Akinyemi & David Miller
Objective: To develop a clinical informatics pipeline designed to capture large-scale structured EHR data for a national patient registry. Materials and Methods: The EHR-R-REDCap pipeline is implemented using R-statistical software to remap and import structured EHR data into the REDCap-based multi-institutional Merkel Cell Carcinoma (MCC) Patient Registry using an adaptable data dictionary. Results: Clinical laboratory data were extracted from EPIC Clarity across several participating institutions. Labs were transformed, remapped and imported into the MCC registry...
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