The experience of patient partners in research: a qualitative systematic review and thematic synthesis

Jonathan Lauzon-Schnittka, Sophie Audette-Chapdelaine, Denis Boutin, Catherine Wilhelmy, Anne-Marie Auger & Magaly Brodeur
Abstract Context Patient engagement in research consists in involving patients as partners across the research cycle. This practice has quickly become an international standard, with funding bodies actively encouraging it. As the increased incentive to engage patients can lead to tokenistic partnerships, it is important to consider the experiences of patient-partners. Objective To synthesize the qualitative literature on the experience of patients as partners in research. Design A systematic review of the literature with thematic...
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