Patient involvement in basic rheumatology research at Nijmegen: a three year’s responsive evaluation of added value, pitfalls and conditions for success

Maarten P. T. de Wit, M. I. Koenders, Y. Neijland, F. H. J. van den Hoogen, P. M. van der Kraan, F. A. J. van de Loo, H. Berkers, M. Lieon, A. van Caam & C. van den Ende
Abstract Background Empirical evidence for effective patient-researcher collaboration in basic research is lacking. This study aims to explore good working models and impact of patient involvement in basic rheumatology research and to identify barriers and facilitators. Method A responsive evaluation of a three years’ participatory research project in a basic and translational laboratory research setting. Several working models for patient involvement were piloted and adapted if considered necessary. The study comprised surveys, interviews, training days,...
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