Stakeholder engagement in eight comparative effectiveness trials in African Americans and Latinos with asthma

Tiffany Dy, Winifred J. Hamilton, C. Bradley Kramer, Andrea Apter, Jerry A. Krishnan, James W. Stout, Stephen J. Teach, Alex Federman, John Elder, Tyra Bryant-Stephens, Rebecca J. Bruhl, Shawni Jackson & Kaharu Sumino
Abstract Background The effects of stakeholder engagement, particularly in comparative effectiveness trials, have not been widely reported. In 2014, eight comparative effectiveness studies targeting African Americans and Hispanics/Latinos with uncontrolled asthma were funded by the Patient-Centered Outcomes Research Institute (PCORI) as part of its Addressing Disparities Program. Awardees were required to meaningfully involve patients and other stakeholders. Using specific examples, we describe how these stakeholders substantially changed the research protocols and in other ways participated...
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