4 Works

Data from: The prevalence of MS in the United States: a population-based estimate using health claims data

Mitchell T. Wallin, William J. Culpepper, Jonathan D. Campbell, Lorene M. Nelson, Annette Langer-Gould, Ruth Ann Marrie, Gary R. Cutter, Wendy E. Kaye, Laurie Wagner, Helen Tremlett, Stephen L. Buka, Piyameth Dilokthornsakul, Barbara Topol, Lie H. Chen & Nicholas G. LaRocca
Objective: To generate a national multiple sclerosis (MS) prevalence estimate for the United States by applying a validated algorithm to multiple administrative health claims (AHC) datasets. Methods: A validated algorithm was applied to private, military, and public AHC datasets to identify adult cases of MS between 2008 and 2010. In each dataset, we determined the 3-year cumulative prevalence overall and stratified by age, sex, and census region. We applied insurance-specific and stratum-specific estimates to the...

Data from: A new way to estimate neurologic disease prevalence in the United States

Lorene M. Nelson, Mitchell T. Wallin, Ruth Ann Marrie, W.J. Culpepper, Annette Langer-Gould, Jon Campbell, Stephen Buka, Helen Tremlett, Gary Cutter, Wendy Kaye, Laurie Wagner & Nicholas G. Larocca
Objective: Considerable gaps exist in knowledge regarding the prevalence of neurologic diseases, such as multiple sclerosis (MS), in the United States. Therefore, the MS Prevalence Working Group sought to review and evaluate alternative methods for obtaining a scientifically valid estimate of national MS prevalence in the current health care era. Methods: We carried out a strengths, weaknesses, opportunities, and threats (SWOT) analysis for 3 approaches to estimate MS prevalence: population-based MS registries, national probability health...

Data from: A survey of risk tolerance to multiple sclerosis therapies

Robert J. Fox, Carol Cosenza, Lauren Cripps, Paul Ford, MaryBeth Mercer, Sneha Natarajan, Amber Salter, Tuula Tyry & Stacey S. Cofield
Objective: To determine tolerance to various risk scenarios associated with current MS therapies. Methods: People with MS from the North American Research Committee on Multiple Sclerosis (NARCOMS) Registry’s online cohort and the National Multiple Sclerosis Society were invited to complete a questionnaire on tolerance to real-world risks associated with a hypothetical therapy. Multiple risks levels were presented including, skin rash, infection, kidney injury, thyroid injury, liver injury, and PML. Results: Both progressive multifocal leukoencephalopathy (PML)...

Predicting and Preventing Neglect in Teen Mothers (2001-2007)

John G. Borkowski, Judy Carta, Steven F. Warren, Sharon L. Ramey, Kristi Guest, Bette Keltner, Robin Lanzi, Lorraine Klerman & Craig Ramey
The ‘Predicting And Preventing Child Neglect In Teen Mothers’ project was designed to assess the impact of varying degrees and types of neglect and poor parenting on children’s development during the first 3 years of life, including changes in intelligence and behavior, language, social and emotional well-being, physical growth, and health status. This study included a broad array of assessments related to the construct of childhood neglect, and can be used to test the developmental...

Registration Year

  • 2019
    4

Resource Types

  • Dataset
    4

Affiliations

  • University of Alabama at Birmingham
    4
  • University of Manitoba
    2
  • University of British Columbia
    2
  • University of Maryland, Baltimore
    2
  • Brown University
    2
  • Georgetown University
    2
  • University of Kansas
    1
  • Stanford University
    1
  • St. Joseph's Hospital and Medical Center
    1
  • University of Notre Dame
    1