17 Works

The initiatives of a library association for the promotion of grey literature

Vilma Alberani & Paola De Castro
The main initiatives taken in Italy by the Italian Library Association (AIB) for the development and promotion of grey literature since the recommendations of the seminar of York and following the Italian adhesion to EAGLE (through the Central Library of the Italian National Research Council-CNR) are presented, i.e.: survey the main Italian producers of GL through the application and creation of international and national standards; evaluate the use of grey literature in scientific communication, through...

Assessment of appropriateness of hospitalizations in Ukraine: analytical framework, method, and findings

Olena Doroshenko, Feng Zhao, Valery N. Lekhan, Lilia V. Kriachkova & Alona Goroshko
Objectives: This article reviews the applicability of a customized version of the Appropriateness Evaluation Protocol (AEP) to evaluate the magnitude of inappropriate hospitalizations in two regions of Ukraine. Data and methods: The original AEP was modified to develop a customized tool, which included criteria for the appropriateness of hospitalization and duration of inpatient stay. The customization of the tool followed the Delphi procedure. We randomly selected 381 medical records to test the feasibility and reliability...

Considerations on the organizational approach and treatment of grey literature in Italy

Vilma Alberani
A general view of the organizational approach and treatment of grey literature in Italy is given on the basis of literature data (from 1987 to 1992) and personal experience. The study points out the generally widespread interest for grey literature; the existence of different types of producers and different ways of treating this material. From the analysis of data and statements gathered during the survey, different realities emerge: the one regarding the political administrative world...

Awareness and empowerment in document production and distribution as a “must” for open access: experiences from the “Nancy style” to guarantee quality

Paola De Castro, Sandra Salinetti & Marcus Banks
Co-authored together with Sandra Salinetti and Marcus Banks. - The debate on Grey Literature (GL) has now a very long tradition going from uncertainty and confusion, in the last century, to new certainties and appraisal in the open access era. This implies the general acquisition of the awareness of the importance of GL as a fundamental primary source of information, hence the necessity to empower authors and issuing organization to guarantee quality in both production...

Uniform requirements for Grey literature? Proposal for the adoption of a “Nancy style”

Paola De Castro & Sandra Salinetti
In the last international conferences on Grey Literature (GL), the Internet “sea change” suffered by GL was deeply analysed under its different nuances, coming to the conclusion that the characteristics initially associated to this production have been completely upset. The main advantages of the Net regard information retrieval, document usability and availability against an increased level of responsibility for its authors and issuing organizations.1 This 7th International Conference on GL is devoted to open access,...

Grey literature in information science: production, circulation, and use

Vilma Alberani & Paola De Castro
After a brief consideration of the scope of the discipline and the subjects covered, also in accordance with SIGLE subject categories, a general outlook is given of the main producers of GL in this field, particularly professional organizations and international bodies. Attention is given both to the formal aspect of GL documents and to the objectives they are produced for. The main circulation channels are discussed as well as the databases where they are generally...

Data from: Infant feeding and risk of developing celiac disease: a systematic review

Marco Silano, Carlo Agostoni, Yolanda Sanz & Stefano Guandalini
Objective: To review the evidence for the association of breast feeding, breastfeeding duration or the timing of gluten introduction and the later development of celiac disease (CD). Design: Systematic review. Methods: We searched MEDLINE, via PubMed, EMBASE and Web of Science, for studies published up to 31 August 2015 investigating the association of breastfeeding duration, breast feeding at the moment of gluten introduction or the timing of gluten introduction and the later development of CD....

Data from: Plasmodium vivax diversity and population structure across four continents

Cristian Koepfli, Priscila T. Rodrigues, Tiago Antao, Pamela Orjuela-Sánchez, Peter Van Den Eede, Dionicia Gamboa, Nguyen Van Hong, Jorge Bendezu, Annette Erhart, Céline Barnadas, Arsène Ratsimbasoa, Didier Menard, Carlo Severini, Michela Menegon, Baki Y. M. Nour, Nadira Karunaweera, Ivo Mueller, Marcelo U. Ferreira, Ingrid Felger & Bakri Y. M. Nour
Plasmodium vivax is the geographically most widespread human malaria parasite. To analyze patterns of microsatellite diversity and population structure across countries of different transmission intensity, genotyping data from 11 microsatellite markers was either generated or compiled from 841 isolates from four continents collected in 1999–2008. Diversity was highest in South-East Asia (mean allelic richness 10.0–12.8), intermediate in the South Pacific (8.1–9.9) Madagascar and Sudan (7.9–8.4), and lowest in South America and Central Asia (5.5–7.2). A...

Guidelines for the production of scientific and technical reports: how to write and distribute grey literature

Paola De Castro & Sandra Salinetti
These Guidelines refer to the production of scientific and technical reports, precious documents included in the wider category of Grey Literature (GL), defined "in the International Conferences on GL held in Luxembourg (1997) and in New York (2004)" as: Information produced on all levels of government, academics, business and industry in electronic and print formats not controlled by commercial publishing i.e. where publishing is not the primary activity of the producing body. These Guidelines were...

Quality of grey literature in the open access era: Privilege and Responsibility

Paola De Castro & Sandra Salinetti
The privilege recently gained in the dissemination of Grey Literature (GL) through the widespread use of the Internet implies a new level of responsibility for GL authors and issuing organizations. In the past, in fact, only a limited number of copies were produced, generally inhouse printed, and the target readers were very well focused and known beforehand. Now in the open access era, greater care should be assured not only to the scientific content of...

Visions for Radiation Dosimetry over the Next Two Decades – Strategic Research Agenda of the European Radiation Dosimetry Group

Werner Rühm, Elena Fantuzzi, Roger Harrison, Helmut Schuhmacher, Filip Vanhavere, Joao Alves, Jean-Francois Bottolier-Depois, Paola Fattibene, Željka Knežević, María Antonia Lopez, Sabine Mayer, Saveta Miljanić, Stefan Neumaier, Pawel Olko, Hannes Stadtmann, Rick Tanner & Clemens Woda
Abstract: The European Radiation Dosimetry Group (EURADOS) comprises a self-sustainable network of more than 60 European institutions such as reference and research laboratories, dosimetry services and companies, as well as more than 300 scientists active in the field of radiation dosimetry. The aim of the network is to promote research and development and European cooperation in the field of dosimetry of ionizing radiation and its implementation in routine practice, in order to contribute to compatibility...

Data from: Age and sex prevalence estimate of Joubert Syndrome in Italy

Sara Nuovo, Ilaria Bacigalupo, Monia Ginevrino, Roberta Battini, Enrico Bertini, Renato Borgatti, Antonella Casella, Alessia Micalizzi, Marta Nardella, Romina Romaniello, Valentina Serpieri, Ginevra Zanni, Enza Maria Valente & Nicola Vanacore
Objective: To estimate the prevalence of Joubert syndrome (JS) in Italy applying standards of descriptive epidemiology, and to provide a molecular characterization of the described patients cohort. Methods: We enrolled all patients with a neuroradiologically confirmed diagnosis of JS and resident in Italy in 2018, and calculated age and sex prevalence, assuming a Poisson distribution. We also investigated the correlation between proband chronological age and age at diagnosis, and performed Next-Generation Sequencing (NGS) analysis on...

Data from: Biallelic SQSTM1 mutations in early-onset, variably progressive neurodegeneration

Valentina Muto, Elisabetta Flex, Zachary Kupchinsky, Guido Primiano, Hamid Galehdari, Mohammadreza Dehghani, Serena Cecchetti, Giovanna Carpentieri, Teresa Rizza, Neda Mazaheri, Alireza Sedaghat, Mohammad Yahya Vahidi Mehrjardi, Alice Traversa, Michela Di Nottia, Maria M. Kousi, Yalda Jamshidi, Andrea Ciolfi, Viviana Caputo, Reza Azizi Malamiri, Francesca Pantaleoni, Simone Martinelli, Aaron R. Jeffries, Jawaher Zeighami, Amir Sherafat, Daniela Di Giuda … & Marco Tartaglia
Objective: To characterize clinically and molecularly an early-onset, variably progressive neurodegenerative disorder characterized by a cerebellar syndrome with severe ataxia, gaze palsy, dyskinesia, dystonia, and cognitive decline affecting 11 individuals from 3 consanguineous families. Methods: We used whole-exome sequencing (WES) (families 1 and 2) and a combined approach based on homozygosity mapping and WES (family 3). We performed in vitro studies to explore the effect of the nontruncating SQSTM1 mutation on protein function and the...

Data from: Chromosome inversions and ecological plasticity in the main African malaria mosquitoes

Diego Ayala, Pelayo Acevedo, Marco Pombi, Ibrahima Dia, Daniela Boccolini, Carlo Costantini, Frederic Simard & Didier Fontenille
Chromosome inversions have fascinated the scientific community, mainly because of their role in the rapid adaption of different taxa to changing environments. However, the ecological traits linked to chromosome inversions have been poorly studied. Here, we investigated the roles played by 23 chromosome inversions in the adaptation of the four major African malaria mosquitoes to local environments in Africa. We studied their distribution patterns by using spatially explicit modeling and characterized the ecogeographical determinants of...

A model validation scheme for Monte Carlo simulationsof a medical linear accelerator: geometrical description and dosimetric dataused in the “Linac Action”

Barbara Caccia, Valentin Blidéanu, Maïwenn Le Roy, Hans Rabus & Rick Tanner
Abstract: Radiation therapy has become more complex over the past few years with the use of new techniques like IMRT (Intensity Modulated Radiation Therapy) and stereotactic treatments. Moreover, optimisation of the radiotherapeutic treatment has become a critical point in the overall planning and delivery process due to the trend in dose-escalation with these new techniques and the associated risk for damage to healthy tissue. Typically, in techniques such as IMRT the dose distribution includes steep...

EURADOS Stakeholder Workshop on June 30th, 2016

Rühm Werner, Željka Knežević, Elena Fantuzzi, Roger Harrison, Helmut Schuhmacher, Filip Vanhavere, Joao Alves, Jean-Francois Bottolier-Depois, Paola Fattibene, Phil Gilvin, María Antonia Lopez, Sabine Mayer, Saveta Miljanić, Pawel Olko, Hannes Stadtmann, Rick Tanner, Arturo Vargas & Clemens Woda
Introduction: On June 30th, 2016, the “First EURADOS Stakeholder Workshop” was held at the Helmholtz Center Munich (HMGU) in Neuherberg, Germany. The workshop was jointly organized by the HMGU and the EURADOS Office in conjunction with the 57thEURADOS Council meeting, which took place on June 29thand July 1st, also at the HMGU. In the frame of the “European Joint Programme for the Integration of Radiation Protection Research”, the CONCERT project funded by the European Commission...

Visions for Radiation Dosimetry over the Next Two Decades -Strategic Research Agenda of the European Radiation Dosimetry Group: Version 2020

Jean-François Bottolier-Depois, Isabelle Clairand, Elena Fantuzzi, Paola Fattibene, Roger Harrison, Oliver Hupe, Pawel Olko, Veronika Olšovcová, Werner Rühm, Marco Silari, Rick Tanner & Filip Vanhavere
Introduction: The European Radiation Dosimetry Group (EURADOS) comprises a self-sustainable network of more than 70 European institutions and about 600 scientists active in the field of radiation dosimetry. It was founded in 1981, and was registered in Germany as an “e.V.” (registered society) in 2008. The aim of the network is to promote research and development and European cooperation in the field of dosimetry of ionising radiation. For this, EURADOS has established Working Groups (WGs)...

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  • Istituto Superiore di Sanità
  • Helmholtz Zentrum München
  • Public Health England
  • Physikalisch-Technische Bundesanstalt
  • Institut de Radioprotection et de Sûreté Nucléaire
  • Newcastle University
  • Institute of Nuclear Physics, Polish Academy of Sciences
  • Belgian Nuclear Research Centre
  • National Agency for New Technologies Energy and Sustainable Economic Development
  • Rudjer Boskovic Institute