33 Works

The initiatives of a library association for the promotion of grey literature

Vilma Alberani & Paola De Castro
The main initiatives taken in Italy by the Italian Library Association (AIB) for the development and promotion of grey literature since the recommendations of the seminar of York and following the Italian adhesion to EAGLE (through the Central Library of the Italian National Research Council-CNR) are presented, i.e.: survey the main Italian producers of GL through the application and creation of international and national standards; evaluate the use of grey literature in scientific communication, through...

Italian law n. 219/2017 on consent and advance directives: survey among Ethics Committees on their involvement and possible role

Corinna Porteri, Giulia Ienco, Edda Mariaelisa Turla, Carlo Petrini & Patrizio Pasqualetti
Abstract Background On December 2017 the Italian Parliament approved law n. 219/2017 “Provisions for informed consent and advance directives” regarding challenging legal and bioethical issues related to healthcare decisions and end-of-life choices. The law does not contain an explicit reference to Ethics Committees (ECs), but they could still play a role in implementing the law. Methods A questionnaire-based survey was performed among the ECs of the Italian Institute for Research and Care belonging to the...

Assessment of appropriateness of hospitalizations in Ukraine: analytical framework, method, and findings

Olena Doroshenko, Feng Zhao, Valery N. Lekhan, Lilia V. Kriachkova & Alona Goroshko
Objectives: This article reviews the applicability of a customized version of the Appropriateness Evaluation Protocol (AEP) to evaluate the magnitude of inappropriate hospitalizations in two regions of Ukraine. Data and methods: The original AEP was modified to develop a customized tool, which included criteria for the appropriateness of hospitalization and duration of inpatient stay. The customization of the tool followed the Delphi procedure. We randomly selected 381 medical records to test the feasibility and reliability...

Considerations on the organizational approach and treatment of grey literature in Italy

Vilma Alberani
A general view of the organizational approach and treatment of grey literature in Italy is given on the basis of literature data (from 1987 to 1992) and personal experience. The study points out the generally widespread interest for grey literature; the existence of different types of producers and different ways of treating this material. From the analysis of data and statements gathered during the survey, different realities emerge: the one regarding the political administrative world...

Additional file 1 of The contribution of the 1H-MRS lipid signal to cervical cancer prognosis: a preliminary study

Miriam Dolciami, Rossella Canese, Claudia Testa, Angelina Pernazza, Giusi Santangelo, Innocenza Palaia, Carlo Della Rocca, Carlo Catalano & Lucia Manganaro
Additional file 1: Figure S1. Power analysis (or sample size calculation) for the Mann-Whitney test of the lipid signal.

Additional file 1 of Italian law n. 219/2017 on consent and advance directives: survey among Ethics Committees on their involvement and possible role

Corinna Porteri, Giulia Ienco, Edda Mariaelisa Turla, Carlo Petrini & Patrizio Pasqualetti
Additional file 1. Questionnaire (Italian version and English transaltion).

Additional file 2 of Italian law n. 219/2017 on consent and advance directives: survey among Ethics Committees on their involvement and possible role

Corinna Porteri, Giulia Ienco, Edda Mariaelisa Turla, Carlo Petrini & Patrizio Pasqualetti
Additional file 2. Dataset with responses to the questionnaire (Italian).

Additional file 3 of Italian law n. 219/2017 on consent and advance directives: survey among Ethics Committees on their involvement and possible role

Corinna Porteri, Giulia Ienco, Edda Mariaelisa Turla, Carlo Petrini & Patrizio Pasqualetti
Additional file 3. Dateset with responses to the questionnaire (English transaltion).

Data from: Plasmodium vivax diversity and population structure across four continents

Cristian Koepfli, Priscila T. Rodrigues, Tiago Antao, Pamela Orjuela-Sánchez, Peter Van Den Eede, Dionicia Gamboa, Nguyen Van Hong, Jorge Bendezu, Annette Erhart, Céline Barnadas, Arsène Ratsimbasoa, Didier Menard, Carlo Severini, Michela Menegon, Baki Y. M. Nour, Nadira Karunaweera, Ivo Mueller, Marcelo U. Ferreira, Ingrid Felger & Bakri Y. M. Nour
Plasmodium vivax is the geographically most widespread human malaria parasite. To analyze patterns of microsatellite diversity and population structure across countries of different transmission intensity, genotyping data from 11 microsatellite markers was either generated or compiled from 841 isolates from four continents collected in 1999–2008. Diversity was highest in South-East Asia (mean allelic richness 10.0–12.8), intermediate in the South Pacific (8.1–9.9) Madagascar and Sudan (7.9–8.4), and lowest in South America and Central Asia (5.5–7.2). A...

Guidelines for the production of scientific and technical reports: how to write and distribute grey literature

Paola De Castro & Sandra Salinetti
These Guidelines refer to the production of scientific and technical reports, precious documents included in the wider category of Grey Literature (GL), defined "in the International Conferences on GL held in Luxembourg (1997) and in New York (2004)" as: Information produced on all levels of government, academics, business and industry in electronic and print formats not controlled by commercial publishing i.e. where publishing is not the primary activity of the producing body. These Guidelines were...

Visions for Radiation Dosimetry over the Next Two Decades – Strategic Research Agenda of the European Radiation Dosimetry Group

Werner Rühm, Elena Fantuzzi, Roger Harrison, Helmut Schuhmacher, Filip Vanhavere, Joao Alves, Jean-Francois Bottolier-Depois, Paola Fattibene, Željka Knežević, María Antonia Lopez, Sabine Mayer, Saveta Miljanić, Stefan Neumaier, Pawel Olko, Hannes Stadtmann, Rick Tanner & Clemens Woda
Abstract: The European Radiation Dosimetry Group (EURADOS) comprises a self-sustainable network of more than 60 European institutions such as reference and research laboratories, dosimetry services and companies, as well as more than 300 scientists active in the field of radiation dosimetry. The aim of the network is to promote research and development and European cooperation in the field of dosimetry of ionizing radiation and its implementation in routine practice, in order to contribute to compatibility...

Quality of grey literature in the open access era: Privilege and Responsibility

Paola De Castro & Sandra Salinetti
The privilege recently gained in the dissemination of Grey Literature (GL) through the widespread use of the Internet implies a new level of responsibility for GL authors and issuing organizations. In the past, in fact, only a limited number of copies were produced, generally inhouse printed, and the target readers were very well focused and known beforehand. Now in the open access era, greater care should be assured not only to the scientific content of...

Additional file 2 of Italian law n. 219/2017 on consent and advance directives: survey among Ethics Committees on their involvement and possible role

Corinna Porteri, Giulia Ienco, Edda Mariaelisa Turla, Carlo Petrini & Patrizio Pasqualetti
Additional file 2. Dataset with responses to the questionnaire (Italian).

The contribution of the 1H-MRS lipid signal to cervical cancer prognosis: a preliminary study

Miriam Dolciami, Rossella Canese, Claudia Testa, Angelina Pernazza, Giusi Santangelo, Innocenza Palaia, Carlo Della Rocca, Carlo Catalano & Lucia Manganaro
Abstract Background The aim of this study was to investigate the role of the lipid peak derived from 1H magnetic resonance (MR) spectroscopy in assessing cervical cancer prognosis, particularly in assessing response to neoadjuvant chemotherapy (NACT) of locally advanced cervical cancer (LACC). Methods We enrolled 17 patients with histologically proven cervical cancer who underwent 3-T MR imaging at baseline. In addition to conventional imaging sequences for pelvic assessment, the protocol included a single-voxel point-resolved spectroscopy...

Effectiveness of vaccination against SARS-CoV-2 Omicron variant infection, symptomatic disease, and hospitalization: a systematic review and meta-analysis

Angela Meggiolaro, Monica Sane Schepisi, Sara Farina, Carolina Castagna, Alessia Mammone, Andrea Siddu, Paola Stefanelli, Stefania Boccia & Giovanni Rezza
This meta-analysis aims to assess the effectiveness of the current Sars-Cov2 vaccine regimens against Omicron infection. A secondary endpoint aims to investigate the waning effectiveness of primary vaccination against symptomatic infection and related hospitalization. The systematic review started on 1 December 2021 and was concluded on 1 March 2022. Random-effects frequentist meta-analyses and multiple meta-regressions were performed. In total, 15 studies are included in the quantitative synthesis. According to the meta-analysis results, the overall risk...

Data from: Infant feeding and risk of developing celiac disease: a systematic review

Marco Silano, Carlo Agostoni, Yolanda Sanz & Stefano Guandalini
Objective: To review the evidence for the association of breast feeding, breastfeeding duration or the timing of gluten introduction and the later development of celiac disease (CD). Design: Systematic review. Methods: We searched MEDLINE, via PubMed, EMBASE and Web of Science, for studies published up to 31 August 2015 investigating the association of breastfeeding duration, breast feeding at the moment of gluten introduction or the timing of gluten introduction and the later development of CD....

Awareness and empowerment in document production and distribution as a “must” for open access: experiences from the “Nancy style” to guarantee quality

Paola De Castro, Sandra Salinetti & Marcus Banks
Co-authored together with Sandra Salinetti and Marcus Banks. - The debate on Grey Literature (GL) has now a very long tradition going from uncertainty and confusion, in the last century, to new certainties and appraisal in the open access era. This implies the general acquisition of the awareness of the importance of GL as a fundamental primary source of information, hence the necessity to empower authors and issuing organization to guarantee quality in both production...

Uniform requirements for Grey literature? Proposal for the adoption of a “Nancy style”

Paola De Castro & Sandra Salinetti
In the last international conferences on Grey Literature (GL), the Internet “sea change” suffered by GL was deeply analysed under its different nuances, coming to the conclusion that the characteristics initially associated to this production have been completely upset. The main advantages of the Net regard information retrieval, document usability and availability against an increased level of responsibility for its authors and issuing organizations.1 This 7th International Conference on GL is devoted to open access,...

Grey literature in information science: production, circulation, and use

Vilma Alberani & Paola De Castro
After a brief consideration of the scope of the discipline and the subjects covered, also in accordance with SIGLE subject categories, a general outlook is given of the main producers of GL in this field, particularly professional organizations and international bodies. Attention is given both to the formal aspect of GL documents and to the objectives they are produced for. The main circulation channels are discussed as well as the databases where they are generally...

The contribution of the 1H-MRS lipid signal to cervical cancer prognosis: a preliminary study

Miriam Dolciami, Rossella Canese, Claudia Testa, Angelina Pernazza, Giusi Santangelo, Innocenza Palaia, Carlo Della Rocca, Carlo Catalano & Lucia Manganaro
Abstract Background The aim of this study was to investigate the role of the lipid peak derived from 1H magnetic resonance (MR) spectroscopy in assessing cervical cancer prognosis, particularly in assessing response to neoadjuvant chemotherapy (NACT) of locally advanced cervical cancer (LACC). Methods We enrolled 17 patients with histologically proven cervical cancer who underwent 3-T MR imaging at baseline. In addition to conventional imaging sequences for pelvic assessment, the protocol included a single-voxel point-resolved spectroscopy...

Detection and whole genome sequencing of murine norovirus in animal facility in Italy

Silvia Tofani, Giovanni Ianiro, Luca De Sabato, Marina Monini, Giorgia Angeloni, Eleonora Ponterio, Claudia D’Agostino, Michele Angelo Di Bari, Mauro Valeri & Ilaria Di Bartolo
Viruses belonging to the genus Norovirus (NoV) of the family Caliciviridae are the major cause of acute viral gastroenteritis worldwide. NoVs are classified into 10 genogroups (GI-GX), and those belonging to the genogroup GV are able to infect several species of rodents. To evaluate the circulation of MNV among mice housed in an Italian facility, sampling was performed over two separate periods, in 2011, and 3 years later in 2014. During the two samplings, 75...

Detection and whole genome sequencing of murine norovirus in animal facility in Italy

Silvia Tofani, Giovanni Ianiro, Luca De Sabato, Marina Monini, Giorgia Angeloni, Eleonora Ponterio, Claudia D’Agostino, Michele Angelo Di Bari, Mauro Valeri & Ilaria Di Bartolo
Viruses belonging to the genus Norovirus (NoV) of the family Caliciviridae are the major cause of acute viral gastroenteritis worldwide. NoVs are classified into 10 genogroups (GI-GX), and those belonging to the genogroup GV are able to infect several species of rodents. To evaluate the circulation of MNV among mice housed in an Italian facility, sampling was performed over two separate periods, in 2011, and 3 years later in 2014. During the two samplings, 75...

Additional file 1 of Italian law n. 219/2017 on consent and advance directives: survey among Ethics Committees on their involvement and possible role

Corinna Porteri, Giulia Ienco, Edda Mariaelisa Turla, Carlo Petrini & Patrizio Pasqualetti
Additional file 1. Questionnaire (Italian version and English transaltion).

Additional file 3 of Italian law n. 219/2017 on consent and advance directives: survey among Ethics Committees on their involvement and possible role

Corinna Porteri, Giulia Ienco, Edda Mariaelisa Turla, Carlo Petrini & Patrizio Pasqualetti
Additional file 3. Dateset with responses to the questionnaire (English transaltion).

Data from: Biallelic SQSTM1 mutations in early-onset, variably progressive neurodegeneration

Valentina Muto, Elisabetta Flex, Zachary Kupchinsky, Guido Primiano, Hamid Galehdari, Mohammadreza Dehghani, Serena Cecchetti, Giovanna Carpentieri, Teresa Rizza, Neda Mazaheri, Alireza Sedaghat, Mohammad Yahya Vahidi Mehrjardi, Alice Traversa, Michela Di Nottia, Maria M. Kousi, Yalda Jamshidi, Andrea Ciolfi, Viviana Caputo, Reza Azizi Malamiri, Francesca Pantaleoni, Simone Martinelli, Aaron R. Jeffries, Jawaher Zeighami, Amir Sherafat, Daniela Di Giuda … & Marco Tartaglia
Objective: To characterize clinically and molecularly an early-onset, variably progressive neurodegenerative disorder characterized by a cerebellar syndrome with severe ataxia, gaze palsy, dyskinesia, dystonia, and cognitive decline affecting 11 individuals from 3 consanguineous families. Methods: We used whole-exome sequencing (WES) (families 1 and 2) and a combined approach based on homozygosity mapping and WES (family 3). We performed in vitro studies to explore the effect of the nontruncating SQSTM1 mutation on protein function and the...

Registration Year

  • 2022
    14
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Resource Types

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    13
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Affiliations

  • Istituto Superiore di Sanità
    33
  • Sapienza University of Rome
    13
  • Centro San Giovanni di Dio Fatebenefratelli
    8
  • Helmholtz Zentrum München
    4
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  • University of Bologna
    4
  • Institut de Radioprotection et de Sûreté Nucléaire
    3
  • Newcastle University
    3
  • Institute of Nuclear Physics, Polish Academy of Sciences
    3
  • Belgian Nuclear Research Centre
    3