3 Works

Assessment of appropriateness of hospitalizations in Ukraine: analytical framework, method, and findings

Olena Doroshenko, Feng Zhao, Valery N. Lekhan, Lilia V. Kriachkova & Alona Goroshko
Objectives: This article reviews the applicability of a customized version of the Appropriateness Evaluation Protocol (AEP) to evaluate the magnitude of inappropriate hospitalizations in two regions of Ukraine. Data and methods: The original AEP was modified to develop a customized tool, which included criteria for the appropriateness of hospitalization and duration of inpatient stay. The customization of the tool followed the Delphi procedure. We randomly selected 381 medical records to test the feasibility and reliability...

Guidelines for the production of scientific and technical reports: how to write and distribute grey literature

Paola De Castro & Sandra Salinetti
These Guidelines refer to the production of scientific and technical reports, precious documents included in the wider category of Grey Literature (GL), defined "in the International Conferences on GL held in Luxembourg (1997) and in New York (2004)" as: Information produced on all levels of government, academics, business and industry in electronic and print formats not controlled by commercial publishing i.e. where publishing is not the primary activity of the producing body. These Guidelines were...

Data from: Age and sex prevalence estimate of Joubert Syndrome in Italy

Sara Nuovo, Ilaria Bacigalupo, Monia Ginevrino, Roberta Battini, Enrico Bertini, Renato Borgatti, Antonella Casella, Alessia Micalizzi, Marta Nardella, Romina Romaniello, Valentina Serpieri, Ginevra Zanni, Enza Maria Valente & Nicola Vanacore
Objective: To estimate the prevalence of Joubert syndrome (JS) in Italy applying standards of descriptive epidemiology, and to provide a molecular characterization of the described patients cohort. Methods: We enrolled all patients with a neuroradiologically confirmed diagnosis of JS and resident in Italy in 2018, and calculated age and sex prevalence, assuming a Poisson distribution. We also investigated the correlation between proband chronological age and age at diagnosis, and performed Next-Generation Sequencing (NGS) analysis on...

Registration Year

  • 2019

Resource Types

  • Dataset
  • Text


  • Istituto Superiore di Sanità
  • University of Pavia
  • University of Salerno
  • World Bank Group
  • Bambino Gesù Children's Hospital
  • University of Pisa
  • Dnipropetrovsk State Medical Academy
  • Eugenio Medea