8 Works

Prevalence, causes, and consequences of moral distress in healthcare providers caring for people living with dementia in long-term care during a pandemic

Lynn Haslam-Larmer, Alisa Grigorovich, Hannah Quirt, Katia Engel, Steven Stewart, Kevin Rodrigues, Pia Kontos, Arlene Astell, Josephine McMurray, AnneMarie Levy, Kathleen S Bingham, Alastair J Flint, Colleen Maxwell & Andrea Iaboni
Healthcare providers caring for people living with dementia may experience moral distress when faced with ethically challenging situations, such as the inability to provide care that is consistent with their values. The COVID-19 pandemic produced conditions in long-term care homes (hereafter referred to as ‘care homes’) that could potentially contribute to moral distress. We conducted an online survey to examine changes in moral distress during the pandemic, its contributing factors and correlates, and its impact...

Neuropsychiatric Symptom Burden across Neurodegenerative Disorders and its Association with Function

Daniel Kapustin, Shadi Zarei, Wei Wang, Malcolm A. Binns, Paula M. McLaughlin, Agessandro Abrahao, Sandra E. Black, Michael Borrie, David Breen, Leanna Casaubon, Dar Dowlatshahi, Elizabeth Finger, Corinne E Fischer, Andrew Frank, Morris Freedman, David Grimes, Ayman Hassan, Mandar Jog, Donna Kwan, Anthony Lang, Brian Levine, Jennifer Mandzia, Connie Marras, Mario Masellis, Joseph B. Orange … & Sanjeev Kumar
ObjectiveNeuropsychiatric symptoms (NPS) are prevalent in neurodegenerative disorders, however, their frequency and impact on function across different disorders is not well understood. We compared the frequency and severity of NPS across Alzheimer's disease (AD) (either with mild cognitive impairment or dementia), Cerebrovascular disease (CVD), Parkinson's disease (PD), frontotemporal dementia (FTD), and amyotrophic lateral sclerosis (ALS), and explored the association between NPS burden and function.MethodsWe obtained data from Ontario Neurodegenerative Disease Research Initiative (ONDRI) that included...

Therapists’ perspectives on using brain-computer interface-triggered functional electrical stimulation therapy for individuals living with upper extremity paralysis: a qualitative case series study

Hope Jervis-Rademeyer, Kenneth Ong, Alexander Djuric, Sarah Munce, Kristin E. Musselman & Cesar Marquez-Chin
Abstract Background Brain computer interface-triggered functional electrical stimulation therapy (BCI-FEST) has shown promise as a therapy to improve upper extremity function for individuals who have had a stroke or spinal cord injury. The next step is to determine whether BCI-FEST could be used clinically as part of broader therapy practice. To do this, we need to understand therapists’ opinions on using the BCI-FEST and what limitations potentially exist. Therefore, we conducted a qualitative exploratory study...

The impact of facility-based transitional care programs on function and discharge destination for older adults with cognitive impairment: a systematic review

Alexia Cumal, Tracey J. F. Colella, Martine T. Puts, Poonam Sehgal, Sheryl Robertson & Katherine S. McGilton
Abstract Background Older adults with cognitive impairment are frequently hospitalized and discharged to facility-based transitional care programs (TCPs). However, it is unknown whether TCPs are effective in improving their functional status and promoting discharge home rather than to long-term care. The aims of this systematic review were to examine the effectiveness of facility-based TCPs on functional status, patient and health services outcomes for older adults (≥ 65 years) with cognitive impairment and to determine what...

Prevalence, causes, and consequences of moral distress in healthcare providers caring for people living with dementia in long-term care during a pandemic

Lynn Haslam-Larmer, Alisa Grigorovich, Hannah Quirt, Katia Engel, Steven Stewart, Kevin Rodrigues, Pia Kontos, Arlene Astell, Josephine McMurray, AnneMarie Levy, Kathleen S Bingham, Alastair J Flint, Colleen Maxwell & Andrea Iaboni
Healthcare providers caring for people living with dementia may experience moral distress when faced with ethically challenging situations, such as the inability to provide care that is consistent with their values. The COVID-19 pandemic produced conditions in long-term care homes (hereafter referred to as ‘care homes’) that could potentially contribute to moral distress. We conducted an online survey to examine changes in moral distress during the pandemic, its contributing factors and correlates, and its impact...

Neuropsychiatric Symptom Burden across Neurodegenerative Disorders and its Association with Function

Daniel Kapustin, Shadi Zarei, Wei Wang, Malcolm A. Binns, Paula M. McLaughlin, Agessandro Abrahao, Sandra E. Black, Michael Borrie, David Breen, Leanna Casaubon, Dar Dowlatshahi, Elizabeth Finger, Corinne E Fischer, Andrew Frank, Morris Freedman, David Grimes, Ayman Hassan, Mandar Jog, Donna Kwan, Anthony Lang, Brian Levine, Jennifer Mandzia, Connie Marras, Mario Masellis, Joseph B. Orange … & Sanjeev Kumar
ObjectiveNeuropsychiatric symptoms (NPS) are prevalent in neurodegenerative disorders, however, their frequency and impact on function across different disorders is not well understood. We compared the frequency and severity of NPS across Alzheimer's disease (AD) (either with mild cognitive impairment or dementia), Cerebrovascular disease (CVD), Parkinson's disease (PD), frontotemporal dementia (FTD), and amyotrophic lateral sclerosis (ALS), and explored the association between NPS burden and function.MethodsWe obtained data from Ontario Neurodegenerative Disease Research Initiative (ONDRI) that included...

The impact of facility-based transitional care programs on function and discharge destination for older adults with cognitive impairment: a systematic review

Alexia Cumal, Tracey J. F. Colella, Martine T. Puts, Poonam Sehgal, Sheryl Robertson & Katherine S. McGilton
Abstract Background Older adults with cognitive impairment are frequently hospitalized and discharged to facility-based transitional care programs (TCPs). However, it is unknown whether TCPs are effective in improving their functional status and promoting discharge home rather than to long-term care. The aims of this systematic review were to examine the effectiveness of facility-based TCPs on functional status, patient and health services outcomes for older adults (≥ 65 years) with cognitive impairment and to determine what...

Therapists’ perspectives on using brain-computer interface-triggered functional electrical stimulation therapy for individuals living with upper extremity paralysis: a qualitative case series study

Hope Jervis-Rademeyer, Kenneth Ong, Alexander Djuric, Sarah Munce, Kristin E. Musselman & Cesar Marquez-Chin
Abstract Background Brain computer interface-triggered functional electrical stimulation therapy (BCI-FEST) has shown promise as a therapy to improve upper extremity function for individuals who have had a stroke or spinal cord injury. The next step is to determine whether BCI-FEST could be used clinically as part of broader therapy practice. To do this, we need to understand therapists’ opinions on using the BCI-FEST and what limitations potentially exist. Therefore, we conducted a qualitative exploratory study...

Registration Year

  • 2023
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  • 2022
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Affiliations

  • Toronto Rehabilitation Institute
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  • University of Toronto
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  • University Health Network
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  • University of Tennessee Health Science Center
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  • North West Agriculture and Forestry University
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  • Sixth Affiliated Hospital of Sun Yat-sen University
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  • Sun Yat-sen University
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  • Zhejiang University
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  • Central South University
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  • Wilfrid Laurier University
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