4 Works
Additional file 1 of Towards the international interoperability of clinical research networks for rare diseases: recommendations from the IRDiRC Task Force
Rima Nabbout, Galliano Zanello, Dixie Baker, Lora Black, Isabella Brambilla, Orion J. Buske, Laurie S. Conklin, Elin Haf Davies, Daria Julkowska, Yeonju Kim, Thomas Klopstock, Harumasa Nakamura, Kim G. Nielsen, Anne R. Pariser, Jose Carlos Pastor, Maurizio Scarpa, Maureen Smith, Domenica Taruscio & Stephen Groft
Additional file 1. The survey developed to better understand the clinical research networks (CRN) activities and challenges included 37 questions in 9 parts addressing the demography of the CRN, the characterization of the CRN funds, the type of activities conducted, the types of research conducted, the barriers to research collaboration, the International interoperability structure of the CRN, the infrastructures conducive to collaboration and the methodology for the measurement of the key performance indicators.
Priority III: top 10 rapid review methodology research priorities identified using a James Lind Alliance Priority Setting Partnership
Claire Beecher, ELAINE TOOMEY, Beccy Maeso, Caroline Whiting, Derek C. Stewart, Andrew Worrall, Jim Elliott, Maureen Smith, Theresa Tierney, Bronagh Blackwood, Teresa Maguire, Melissa Kampman, Benny Ling, Catherine Gill, Patricia Healy, Catherine Houghton, Andrew Booth, Chantelle Garritty, James Thomas, Andrea C Tricco, Nikita N. Burke, Ciara Keenan & Declan Devane
Objectives: A rapid review is a form of evidence synthesis considered a resource-efficient alternative to the conventional systematic review. Despite a dramatic rise in the number of rapid reviews commissioned and conducted in response to the coronavirus disease 2019 pandemic, published evidence on the optimal methods of planning, doing, and sharing the results of these reviews is lacking. The Priority III study aimed to identify the top 10 unanswered questions on rapid review methodology to...
Priority III: top 10 rapid review methodology research priorities identified using a James Lind Alliance Priority Setting Partnership
Claire Beecher, ELAINE TOOMEY, Beccy Maeso, Caroline Whiting, Derek C. Stewart, Andrew Worrall, Jim Elliott, Maureen Smith, Theresa Tierney, Bronagh Blackwood, Teresa Maguire, Melissa Kampman, Benny Ling, Catherine Gill, Patricia Healy, Catherine Houghton, Andrew Booth, Chantelle Garritty, James Thomas, Andrea C Tricco, Nikita N. Burke, Ciara Keenan & Declan Devane
Objectives: A rapid review is a form of evidence synthesis considered a resource-efficient alternative to the conventional systematic review. Despite a dramatic rise in the number of rapid reviews commissioned and conducted in response to the coronavirus disease 2019 pandemic, published evidence on the optimal methods of planning, doing, and sharing the results of these reviews is lacking. The Priority III study aimed to identify the top 10 unanswered questions on rapid review methodology to...
Additional file 1 of Towards the international interoperability of clinical research networks for rare diseases: recommendations from the IRDiRC Task Force
Rima Nabbout, Galliano Zanello, Dixie Baker, Lora Black, Isabella Brambilla, Orion J. Buske, Laurie S. Conklin, Elin Haf Davies, Daria Julkowska, Yeonju Kim, Thomas Klopstock, Harumasa Nakamura, Kim G. Nielsen, Anne R. Pariser, Jose Carlos Pastor, Maurizio Scarpa, Maureen Smith, Domenica Taruscio & Stephen Groft
Additional file 1. The survey developed to better understand the clinical research networks (CRN) activities and challenges included 37 questions in 9 parts addressing the demography of the CRN, the characterization of the CRN funds, the type of activities conducted, the types of research conducted, the barriers to research collaboration, the International interoperability structure of the CRN, the infrastructures conducive to collaboration and the methodology for the measurement of the key performance indicators.
Affiliations
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Canadian Organization for Rare Disorders4
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University of Limerick2
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Queen's University Belfast2
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Assistance Publique - Hôpitaux de Paris2
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Sanford Research2
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National Institutes of Health2
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University of Valladolid2
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University of Wisconsin–Madison2
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Public Health Agency of Canada2
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National Center of Neurology and Psychiatry2